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The official website of Paul Franklin: a father, veteran, activist, motivational speaker, and proud Canadian.

Tuesday, November 1, 2011

Some updates on the ACC

 Master Corporal Paul Franklin's recovery and rehabilitation was at the Glenrose Rehabilitation Hospital in Edmonton, Alberta after losing both of his legs to a suicide bomber in Afghanistan.  Paul noticed discrepancies between the level of treatment that was available to military patients versus civilians. 

Dismayed by the difference in care available versus what is possible, he vowed to make positive changes for all amputees in need of care and support.
Coalition des amputés du Canada
http://www.amputeecoalitioncanada.org/en/index.php
http://www.amputee-coalition.org/inmotion/oct_07/intro_npn.html

Amputees from across Canada are facing several issues and each one will be addressed over time.  From provinces that offer discrepant funding issues, to high tech prosthesis, to peer support issues and even research into high tech (high ticket) items that will give direct improvement to the amputee.

The ACC is now the second largest charitable group helping amputees in Canada.  

We see that the future of amputee care can be addressed by the Triangle of Care.

triangle
Amputee Coalition of Canada Triangle of Care
Paul Franklin (MCpl ret.) is now the Fundraising Chair of the Amputee Coalition of Canada (ACC) and is working to institute national level programs for amputee support. Any money raised has directly affected the lives of amputees across Canada.

The ACC is an organization that I am very proud of and myself and many volunteers  helped fund the ACC and their development of the amputee peer support network.  


Together we have acrredited 232 peer visitors in every province of Canada,  (the programs are offered by certified trainers in either French and English).  It is based on the Amputee Coalition of Americas very successful program and the ACC is the only organization that offers this service.  Hospitals and Rehabiltation facilities know that if an ACC acccredited peer visitor makes the visit the amputee be it someone who just suffered limb loss or someone who has been long in suffering will never be the same.


A chinese lion statue
Simon and I walking to school the day after leaving the Glenrose hospital 2006
www.paulfranklin.ca


In the area of research we will be offering out first $10 000 grants have received very interesting proposals to the Medical Advisory board.

Ontop of theis the head of the MC is working with Dr Todd Kukien the inventor of the Bionic Arm to know working on a new project where they are studying and reasearching ways to create a bionic prosthetic limb that "feels".
http://www.physorg.com/news142608495.html


pals
The FF has also helped fund the PALS  (promoting amputee life skills) program that has its roots at John Hopkins University.  The first set of trainers have gone through the program under its creator Dr Stephen Weaener and the next groups will soon be set up in Thunder Bay, Quebec city and Winnipeg.  Our goal of medically certified programs that directly help people with limb loss is and always will be our mandate
http://www.oandp.org/publications/jop/2006/2006-29.asp.
http://www.jhsph.edu/injurycenter/practice/promoting_amputee_life_skills/


IF YOU OR A LOVED ONE HAS RECENTLY HAD AN AMPUTATION OR WILL IN THE FUTURE, IT IS CERTAINLY A TIME OF HIGH STRESS, WORY, FEAR AND CONFUSION.
Two lower-limb amputees sitting and talking"You will certainly have some doubts and questions about your or your loved one’s future – doubts and questions about working, raising a family, maintaining a relationship, caring for yourself or your loved one, and doing basic daily living activities. Other questions may be more technical or focused on immediate concerns:
  • Is the pain terrible?
  • How long will I or my loved one be in the hospital?
  • Will it hurt a lot after the surgery?
  • How does the artificial limb (prosthesis) stay on?
So where do you turn for information, guidance and emotional support to help you through the numerous questions, decisions, choices and alternatives you will face as you enter this new path in life? Who can give you insight into the world you have entered and demonstrate that life goes on and can again become happy, full and productive? In many cases, only another amputee who has experienced a similar situation, had similar questions, and faced similar decisions can really provide the answers you need. That is the power of peer support."
by Becky Bruce, ACA Outreach Information Specialist
http://www.amputee-coalition.org/military-instep/power-peer-support.html

There are lots more organizations and groups that are not listed here so please forward:


Amputee Support Links:
Amputee Specific
Amputee Coalition of Canada www.amputeecoalitioncanada.org
Amputee Coalition of America (ACA)
www.amputee-coalition.org
National Amputee Centre
Educational information for amputees and their families about all aspects of amputation.
www.waramps.ca/nac/home.html
Prosthetika
www.prosthetika.com 
Very good instructional videos on how people with different levels of amputation can perform specific tasks. Click on "watch instructional videos"
Hip disarticulation and hemipelvectomy amputation information and support
www.hphdhelp.org
Amputee News
amputeenews.com
Canadian Amputee Resources
www.amputee.ca
Other National Resources
Active Living Alliance for Canadians with a Disability (ALACD)
Promotes, supports, and enables Canadians with disabilities to lead active, healthy lives.
www.ala.ca
Canadian Association for Prosthetics and Orthotics (CAPO)
www.pando.ca
Canadian Paraplegic Association (CPA)
Assists those with physical disabilities to achieve independence, self reliance, and full community participation. 
www.canparaplegic.org
Community Specific Resources
Glenrose Rehabilitation Hospital Adult Amputee Program
One of Canada's largest freestanding tertiary rehabilitation hospitals in Edmonton, Alberta providing services to Edmonton and surrounding regions.
www.capitalhealth.ca/adultamputeeprogram
The Steadward Centre for Personal and Physical Achievement
A disability research and fitness centre at the University of Alberta, in Edmonton, Alberta, that provides physical activity and sport programs for people with disabilities
www.steadwardcentre.ualberta.ca
Alberta Amputee Sport and Recreation Association (AASRA)
Supports and provides opportunities for amputees in recreation and sporting activities. 
www.aasra.ab.ca
Canadian Sports and Recreation
Canadian Paralympic Committee "Feel the Rush" program
Check out this informative website, where you can click on the "Get Involved" arrow and enter your location and sporting interest to find the nearest club or association in your area. Also provides information on Paralympic sport, a great venue not just for competition but for families and friends to try challenging sporting activities together with you!
www.feeltherush.ca
Canadian Association for Disabled Skiing (CADS)
A volunteer based organization having the objective of assisting individuals with a disability to participate in skiing and snowboarding. 
www.disabledskiing.ca
Canadian Association for Disabled Skiing - National Capital Division 
The National Capital Division is a member of CADS and oversees programs and services operating in the regions of Eastern Ontario and Western Quebec.
www.cads-ncd.ca
Canadian Amputee Hockey Team
www.canadianamputeehockey.ca
Canadian Amputee Golf Association (C.A.G.A)
www.caga.ca
Canadian Amputee Sports Association 
www.canadianamputeesports.ca
Canadian Paralympic Committee 
A non-profit, charitable, private organization that delivers programs that strengthen the Paralympic Movement in Canada, including sending Canadian teams to the Paralympic Games. The CPC empowers persons with physical disabilities, through sport, at all levels. 
www.paralympic.ca
Paralympics Sports Association 
Provides recreational and sporting opportunities for individuals with a disability across Alberta.
www.parasports.net
Ontario Amputee and Les Autres Sports Association
www.oalasa.org
International Sports and Recreation
International Paralympic Committee
www.paralympic.org
National Sports Center for the Disabled
Positively impact the lives of people with any physical or mental disability through quality adaptive recreation programs in over 20 sports in the United States.
www.nscd.org
Disabled Sport USA
www.dsusa.org
World Amputee Football (Soccer) 
www.worldamputeefootball.com
Online Groups for Information and Support
Consider joining an online group for information and support, such as:
Heather Mills Amputee Forum www.heathermills.eu/forum
Less than Four
The online community for amputees", which has a very informative "how to ride a bike" video for above knee amputees.
How to ride a bike: www.lessthanfour.org/bongoboy/blog/media/video/index.one?a=view_video&vid_id=107641
Other resources
Canadian Forces Personnel Support Agency - Soldier ON
The Soldier On program was created to support those in the Canadian Forces, both serving and retired, and their eligible dependents with a physical or mental disability to fully and actively participate in physical activity, recreation or sport. 
www.cfpsa.com/en/psp/SoldierOn/index.asp
Abilities magazine
www.abilities.ca
Rick Hansen Foundation
www.rickhansen.com
Td Can, To Do, Canada
Provides sports links for the physically disabled in Canada

www.td.ca
Freedoms Wings 
Provides sports links for the physically disabled in Canada

www.freedomswings.ca/fw

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